ITP Study Information for Parents, Patients and GPs

Please select an option below to download a document, these are either in Microsoft Word or Adobe Acrobat formats:

boyWhat is ITP?

This leaflet explains about immune thrombocytopenic purpura (ITP), which is a blood disorder affecting the platelets. It also explains what to expect when your child is diagnosed with the condition.
Download the document in Acrobat (pdf) or Work (doc) format



Parent/Patient consent

the UK Paediatric ITP working party are required to obtain parental/patient consent to include the patient in the registry

Download the parent/patient consent form

Download the patient re-consent form


Information for Patients

These documents cover the following questions you might have and are organised by age group:


Information for Parents

This document covers the following questions you may have as a parent regarding the registry:

  • Q - What is the purpose of the registry?
  • Q - Why has my child been chosen?
  • Q - Does my child have to take part?
  • Q - What do I have to do?
  • Q - What will happen if my child takes part?
  • Q - Are there any disadvantages or risks involved in my child’s participation in the project?
  • Q - What are the possible benefits of taking part?
  • Q - Will my child’s participation in this study be kept confidential?
  • Q - What will happen to the results of the study?
  • Q - Who is organising and funding the research?
  • Read the full Information for Parents document

  • For further information regarding ITP, please read 'What is ITP?' Information for parents, in Acrobat (pdf) or Work (doc) format