The UK Paediatric ITP registry is a multi-centre study designed to collect prospective data on all new cases of childhood immune thrombocytopenic purpura (ITP)
The database will continue to collect data for many years about children whose ITP fails to resolve. Clinical data, bleeding severity, platelet counts and management will be recorded.
More information on the study, including the Protocol, can be read here
The Registry is generously supported by the ITP Support Association
Recruitment is open to all patients between the ages of 2 months and 18 years that have been diagnosed at any time.
Further information sheets and letters of invite can be downloaded from the Documents page.
Also see the specific 'Information for Patients' and 'Information for Consultants, GPs, Paediatricians & Haematologists' sections of the web site.
Centres wishing to take part in the UK Paediatric ITP study must contact Molly Pursell in the first instance, via email, via the Registration of Interest form (for NHS Net users only) or call 0161 701 8422.
Once confirmed, users will be issued with a username and password to enable access to the database.
Some users are unable to visit the web site from the links provided, please copy
https://nww.mdsas.nhs.uk/itp/index.htm into the address bar to enter the registry
Please note that only NHS Net users will be able to access this system.
We hope that you will agree to participate in this study which has COREC approval and is supported by the ITP Support Group.
- Read information on the ITP registry for consultants, GPs, paediatricians and haematologists
We are trying to gain more information about the medical condition Immune Thrombocytopenic Purpura, your child could help...
- Read information for patients and families